Results from Endoscopy

There was good and bad news that came from Tye’s Pediatric G.I. doctor.

The bad news is that Tye is refluxing and aspirating. Gastric juices and slightly digested food is refluxing up the esophagus and going back down the bronchial tubes (part of the lungs). The biopsies of the bronchial tubes showed several lipid-laden macrophages. I’m going to try my best to explain what these are….lipid-laden macrophages are white blood cells that the body makes to clean up what shouldn’t be there. These would not be present unless aspiration is ocurring. The doctor referenced pac-man to describe them.

The good news is that the other biopsies of the small intestine, the esophagus and the stomach showed that they are healthy at this point. This means that the prevacid that Tye takes is doing it's job which is to heal any damage from the reflux.

Aspiration can cause a number of serious illnesses like pneumonia or a lifetime of Asthma. At this point we are seeing croup like symptoms….the doctor says this can happen after Tye has a large aspiration. We are seeing this after he has been laying flat for naps and over the night. He will wake up with a croup like cough. If it gets bad enough like we have had in the past he can be treated with steroids to shrink some of the swelling in the esophagus. The reason we have not found the steroids to work in the past as well as they should is because he is not actually catching croup like other kids can. It is actually symptoms of the reflux & aspirating.

Anti-reflux surgery called fundoplication of the stomach has been suggested to help Tye by the P.G.I. doctor. The pediatric surgeon will wrap the upper portion of the stomach partially or completely around the esophagus at the junction where the esophagus meets the stomach. This creates a one way valve such that liquid and food cannot reflux back into the esophagus.

In most cases this procedure is done laparoscopically. Small incisions will be made: one in the belly button, one up high on the stomach ,and two in the lower abdomen. It only is done open when there are other organs, like the liver, in the way or the child is super tiny.

The hospital stay can be anywhere from 1 night to 7 nights without any complications. Depending on the child’s needs, a feeding tube, or g-tube, may be placed into the stomach at the time of surgery. We should know more about this after meeting with the peds surgeon on October 15th. The g-tube is used to burp or relieve any bloat. Also, it can be used for feeding if necessary, or for extracting in the case of the need to vomit. It will take time after the surgery for a child to be able to do these things on their own.

Recovery time can be different for every case. Our doctor informed us that it could take up to a year for Tye’s “insides” to heal. Generally, a six week liquid or pureed diet is recommended. After 6 weeks solid food will be reintroduced slowly.

This is what I know and understand right now….I will be updating my information after speaking with the surgeon in a couple of weeks.

Peek-A-Boo

Tye was very cute this morning playing in the laundry basket with his daddy!

Channing & Tye

Do you think Tye has his first crush?

At the park

We played at the park today with my good friend, Kerinda, and her kids, Channing & Gannon. Both of us are without husbands this week. Bob left early this morning to drive to Pocatello, Idaho. Then he will head through Montana and Washington State for a game Saturday, and return home on Sunday.

Hanging out in the backyard

We are starting to feel a little bit of fall with cooler evenings and mornings here in Idaho. It's been nice to get out the jeans and long sleeve t-shirts. This is a new shirt from Aunt Shelly! Very cute!

After Surgery Pictures

Tye's procedure

Yesterday, we arrived at St. Luke's hospital bright and early for Tye's procedure. Our doctor had one surgery before Tye's which went much longer than scheduled so we spent a couple hours in the pre-op area. Thank goodness for a great play area that was donated by our friends, Beth and Adam, who have a foundation in memory of their son, AJ. When Dr. Beck was just about ready for Tye he was given a concoction of pain medicine and sedative, orally. He began to act completely goofy! Bob and I could not help but laugh at him. After they took him he was put to sleep with a gas mask then an IV was started followed by the surgery.

We saw Tye about an hour later in a room on the pediatric floor. Other than having many wires hooked up to him enabling him from walking around he did very well.

We should have results to the biopsies next week. The only result they had right away was from what they could see visually. There was swelling around the vocal cords that is abnormal. Debris was removed in the bronchial tubes that was also abnormal. The tubes were also red and contained white spots. This can all be related to reflux.

Pediatrician Appointment

Tye visited Dr. Zieba, our pediatrician, today for his 18 month check up and shots. I guess he will have one shot at 2 years old then he won't need anymore until Kindergarten. That's a scary thought...Kindergarten. My baby will never be that old. :)

Tye weighed in today at 20 lbs. 7 ozs. and he is 31 1/2 inches long. Although, his weight gain is very slow he grew and inch and 1/2 in 2 months and one shoe size. I could not figure out why Tye did not want to put on his shoes that he loves so much. Yes, I am talking about those shoes he insists on putting on first thing in the morning. They do go well with all his outfits, but not so well with his pajamas. I took him to our (okay my) favorite kid's shoes store, Little Feet, and he measured a whole size larger than his sandals. He still just wears a 5 1/2.

Anyway, back to the doctors visit. It all went fine. Tye cried for a couple minutes after his shots then tore off his band aid and we were off.

A Night Out

Last night I enjoyed a night out with my friends at a bar called The Reef. Tye has become accustomed to playing at our neighbors across the street so it was not difficult to leave him. When we visit Tye knows right where to go to get out the toys and he doesn't waste any time. Carol and Keith are grandparents to Katie, who is three. They have a crib for Katie that Tye uses while he is over there. He will play hard then they put him to bed. They truly are the greatest babysitters!

Anyway, my great friend Kerinda, has many sisters and just one younger brother, Tyrone Wells. Tyrone is touring with his band which brought him to Boise last night for the second time since we moved here. He is tremendous! Go check him out at http://www.myspace.com/tyronewells Here is a picture from May when he was in town.

Bathtub

Tye had to take a bath today after squeezing dog poop in his hand. He was all squeeky clean but didn't want to get out. He played in the dry tub for 10 minutes being very goofy.

Another Video

Neighborhood Video

This video was taken at one of our neighborhood playgrounds. Bo climbed up the stairs with Tye the other day so now he will not go up there without him!